Prairie Oak Homestead

I saw this video yesterday and really liked it. Just thought I'd share and hope it encourages someone. :)

I have hope. Yes, I'm sick. Yes, I hurt really bad today. No, there is no cure for my illness. But, I must move on. I must not dwell. I must LIVE. So with the gift of perseverance that God gave me I will do just that. It may not be the way other people live when they are in pain every single day or have a neuromuscular illness, but I can't just sit and ignore life and feel the pain. I need to live life and try to ignore the pain. I have hope that the days ahead will not be as hard as the days past. I have hope that I will be able to enjoy my life that God has so chosen for me. I have hope that He will take me through this and I will build a character that is more like His. I have hope for the day when this will all end and I will forever be pain free. No more pain, no more suffering. I suffer here, but I will not when that Day comes. When I see my Savior face to face. Oh what a day that will be! Until then, I hope to make a difference in this world for Christ. I wil...

Here's a little update. Although my Myasthenia Gravis is progressing, we decided that a treatment would be the VERY last resort due to the ill effects I have had with both IVIG and plasmapheresis. So, he has doubled my immunosuppressive dose. This will slow the progression. I showed him my research on the supplement Moducare and he stated that he didn't care if I took it or not. He said he wasn't sure if it would work or not. But, it's worth a shot. I think it helps as patients to have an understanding of your disease. We need to keep updated on things and the best treatment options for ourselves. We need to know our limits and our strengths. In all this, we need to keep God centered because He is after all the Great Physician. He knows best. I will try the experimental supplement and hope for the best. If nothing else, it should lessen the side effects of the immunosuppressive. It could however, modulate my immune system like the IVIG would and I could pote...

I didn't have an appt until Sept 9th, but I ended up needing to go in sooner. I'm having a lot of weakness, pain, choking, exhaustion, etc. They may want to do a treatment, which I'm not looking forward to. There are a lot of side effects to it and some dangers. BUT, if that is what God wants for me then I'll do it. I was looking at the IVIG info today again after not really thinking about it for several years. It has been 8 years since that particular treatment and that particular 14 day hospital stay being close to death. While looking, I found that it is meant as an immune system modulator. The plasmapheresis is meant to remove antibodies so they don't attack me anymore. :) Well, there is a supplement called Moducare that is an immune system modulator. Most supplements are immune system boosters, which I cannot take. This would be similar to the IVIG but would take more time to regulate than the IVIG would. It looks promising though. I am going to tak...

I haven't posted the last few days because I have been hurting. It takes all I have to do my daily chores. I love this song so much. It gives me a lot of hope for that day. It's kinda long, but enjoy! My husband was sick with an upper respiratory virus last week, also. I don't like when I get behind posting. :( Here are some updates... Hunter has started 4-H robotics. It's a great thing for him to do. He is extremely interested in technology and computers. He will be doing the programming for the robot. He's excited about that! Our kittens are 2 weeks old. :) They are getting so cute! I lost my cell phone while doing yard work this week. :( I have learned not to do yard work with your phone in your pocket. I've never really lost anything and not found it before. I have misplaced things and then found them. But, this is GONE. I feel horrible about it. Now we have to buy a new one. Not really cheap. My husband ordered me one the other day. He o...

John Bull, Cleaning Housewives Dusting Polishing Products Magazine, UK, 1953 I've been working on cleaning the inside of the house really good for winter. I like to deep clean around this time of year and maintain in throughout the fall. Sometime during the winter, I will deep clean again. The woodstove puts out a lot of dust. :) I like to clean the windows, too. Living in the country, I like to see what the Lord created. LOL. Not raindrop marks, etc. Housewife Cleaning Glass Window Slats The next task is going to be cleaning the office. Ugh. I'm terrible at organizing! Ah! John Bull, Messy Rooms Housewives Cleaning Products Magazine, UK, 1959 I'd better get busy! LOL One thing at a time, right? I don't want to exacerbate my Myasthenia Gravis any more than it already is. It may take me a while, but I'll get it done. :)